Conditions & Diseases

Treacher Collins Syndrome

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mammothmeat

Trondheim, Norway

Jul 20, 2006 @ 19:59:01

@www. mymultiplesclerosis.co.uk Said
Julianna Wetmore was born with a rare genetic craniofacial disorder known as Treacher Collins Syndrome. This condition normally appears as elongated or sagging eyes and small or missing ears and generally affects 1 in 10,000. Not only is this a rare occurrence but, Julianna has perhaps the most severe case ever seen. The condition was first seen during pre-natal scans where doctors thought that she had a cleft palate. However, the full extent of her disfigurement was not seen until she was born.

Julianna Wetmore - Born Without A Face

I hadn't heard of this condition until I saw a programme on TV about Julianna..

I'm lost for words, but I'm curious to hear your views on this. I'm also curious to know how someone who is affected by it sees it...

newwealth

Little Rock, Arkansas

Oct 16, 2006 @ 22:25:57

Oh my. This poor child. I cannot imagine having to live this way, nor imagine being a parent to such a wonderful yet frightening baby. My heart goes out to Julianna and to her parents .. May god give them the strength and the wisdom they so surely need during these times and the days to come.

angelcake

Say whaaa

Eastleigh, United Kingdom

Oct 16, 2006 @ 22:28:58

that poor baby, i hope they can do something for her...that can't be any good for her at all...health wise as well as mentally, i mean some disfigurements arent a problem as far as health is concerned but im sure that has to be...poor child and poor parents

fadednotgone

Decatur, Texas

Oct 16, 2006 @ 22:36:20

I've seen a couple of programs about Treacher Collins... that poor child. I hope that she and her parents will have the strength to deal with this. I will definately be praying for them.

pop

the cool one,

Oct 18, 2006 @ 03:11:56

aww~poor thing. she'll never be looked at the same way in her life ever again! people will always laff at her. she's got a normal brain just like everyone else. she just looks different. it is a lil gross tho

angeldelight

newcastle upon tyne, United Ki

Nov 25, 2006 @ 01:04:43

i watched part of the show on her a cpl weeks ago here in the uk....she has a marvelous family,who are commited to her wellbeing..although very sad..im sure her parent wouldnt have her any other way now..

dragonwars

Wellington, New Zealand

Nov 25, 2006 @ 01:19:44

one in ten thousand??? thats really high

WildChild

Perv Magnet

Southern Middle, Tennessee

Nov 25, 2006 @ 01:21:31

I've seen something on this before I think Maury did a story on it or something. It was really awful I can't imagine .

squirt_aka_casey

BCW-Ant Destroyer

That place, Ohio

Nov 25, 2006 @ 01:23:59

That poor little girl!!! At least they are doing everything they can. At least she has a lot of love

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