some of you may recall watching hayleys story on tv last year in the uk..

a truly remarkable little girl,suffering from a rare disorder which makes her age rapidly.the normal life expectancy with someone suffering from progeria is just 13 years..

hopefully hayley and her family will be taking part in a documentary again soon as an update from the last show

for those who watched this show,im sure will all agree,a tear must have been in yr eye,as some parts were very personal and sad..the loss of a friend who suffers the same and the aspect of seeing the specially adapted refrigeration bed where hayley will be placed after her death in the comfort of a wonderfull room specially designed for terminally ill children.......

very sad,but she shone to all the world..to share her story and give light into what little is known about this disease..

hayleys progeria site

i saw her programme. it's very inspiring =]